April 25, 2004  Sunday
                                             Day +51 of Transplant
                                                  Day 9 Post-op
 
    While it was nice being home for the weekend it wasn't as relaxing as we hoped.  Paige has remained very irritable and complaining of pain, mostly in her right ankle.  We've given her oxycodone around the clock to control the pain. The tumor on her forehead remains prominent, but it's hard to tell if it's any bigger.  Of course one minute we think it looks bigger and the next it looks smaller.  With the irritability and increased pain we will definitely address the possibility of radiation with Dr. Yanik tomorrow.  With this, Andy has decided to go with us for the appointment.  As I previously mentioned,  the chemotherapy she will receive tomorrow will take up most of the day and since we have to return again early Tuesday morning we'll most likely stay overnight at the hotel.  If everything goes as planned we should be returning home late Tuesday night and we'll update then.  Thanks for checking in.

Love,
Andy, Sandi & Paige